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| LEARNING PATTERNS OF CHILDREN WITH SHWACHMAN-DIAMOND SYNDROME At the 2006 SDS Family Conference, Dr. Elizabeth Kerr gave a very interesting talk focusing on the learning patterns of children (ages 6-17) with Shwachman-Diamond Syndrome. Based on the findings of her research, Phonological Processing, Visual Processing, Attention, Flexible Problem Solving, and Behavior were among the types of difficulties that can be experienced. As such, the following recommendations were made: If you notice specific difficulties, the earlier your child receives support or intervention the better. With a “wait and see” approach, you may miss many months of valuable support. CLICK HERE FOR FULL DETAILS |
| SDS and IEP’s By Nancy Miller and Susan Utz While some children with Shwachman-Diamond Syndrome (SDS) may never require special services in order to benefit from their education, a significant number of them may. Before receiving these services, the child must be determined to have a disability in one or more areas. Recognized categories of disability generally include: autism, communication disorders, dual sensory impairment, early childhood delays, emotional handicaps, hearing impairment, learning disabilities, mental handicaps, multiple handicaps, orthopedic impairments, other health impairments, traumatic brain injury, and visual impairments. Children with Shwachman-Diamond Syndrome may present with medical concerns only or they may exhibit additional characteristics from any of the above listed disabilities. The primary disability impacting his/her education would need to be determined, as well as any related problems. In cases where health impairment was determined to be the primary or the only disability, it would need to be determined that the health impairment adversely affects the child’s educational performance. This may be apparent in limited strength, vitality, or alertness as a result of chronic or acute health problems. CLICK HERE FOR FULL DETAILS |
| Sample Letter for Teachers and Daycare Providers concerning Enzyme Supplements |
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| Coping with the Diagnosis of SDS |
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