| Talk to SDS Families | |||||||||||||||||||||||||||||||||||||
| Would you enjoy e-mailing other Shwachman-Diamond families? Have you ever thought your child seems to have something you may not think is related to the syndrome? Or just want to know how another family deals with certain aspects of the syndrome that your patient may have? SDSF is connected to, but does not provide any medical information for, a list serv support group through Yahoo. It is a good way to stay in contact with other SDS families. | |||||||||||||||||||||||||||||||||||||
| Click on the button at right to join the shwachmandiamond list serv group. If you have any questions, please
contact Joan Mowery at jmlmowery@yahoo.com |
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| If you would like to contact someone in your area about SDS, please feel free to email or call any of these people below. They would be happy to receive your communication and discuss any questions you may have about this disease. | |||||||||||||||||||||||||||||||||||||
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| Real Family Stories | |||||||||||||||||||||||||||||||||||||
| FAMILY RAISES MONEY FOR DOCTOR EDUCATION In April 2008 we learned that our 3 year old daughter, Jordyn, was diagnosed with Shwachman Diamond Syndrome (SDS). Like many SDS families our journey to diagnosis was long as we found the knowledge among the medical community was lacking. Dealing with the diagnosis of SDS has been more than difficult. I was in need of a way to channel my emotions effectively; and so my mission began… Our story spans nearly three years and begins like so many of your own. We knew there was a problem when I was 17 weeks pregnant, and at that time it was determined there was Intrauterine Growth Restriction due to a failing placenta. CLICK HERE FOR FULL STORY |
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