It is part of the Shwachman Diamond Syndrome Foundation’s mission to support patients and families. We strive to link SDS families through the internet and medical family conferences. We also provide families with the most recent medical information, share experiences and provide emotional support.
Please use the following support outlets as a way to stay connected with the SDSF and other SDS families. Also, continue browsing the SDSF website for more information regarding medical conferences (Camp Sunshine), the SDS registry, research articles, fundraising, stories about other SDS families, downloads, and helpful links available for your benefit.
Call/Email the Shwachman Diamond Syndrome Foundation
The Shwachman Diamond Syndrome Foundation encourages families to connect with us and learn more about how we can assist you. Whether you are newly diagnosed or have been dealing with SDS for a long time, please contact us at 1-888-825-SDSF (7373) or email us.
- “Like” the Shwachman Diamonds Syndrome Foundation on Facebook.
- Join “Shwachman Diamond Syndrome Support” Facebook group.
Twitter – cureforafuture
Vimeo Videos – SDSF Vimeo Site/
International SDS Support Groups
Shwachman-Diamond Syndrome Support
Contact: Joan Buchanan
Phone: +61 2 9295 8359
2152 Gatley Road
Canada. L5H 3L9
Shwachman Diamond UK
Contact: Kathryn Doddridge