Support Outlets

It is part of the Shwachman Diamond Syndrome Foundation’s mission to support patients and families. We strive to link SDS families through the internet and medical family conferences. We also provide families with the most recent medical information, share experiences and provide emotional support.

Please use the following support outlets as a way to stay connected with the SDSF and other SDS families. Also, continue browsing the SDSF website for more information regarding medical conferences (Camp Sunshine), the SDS registry, research articles, fundraising, stories about other SDS families, downloads, and helpful links available for your benefit.

Call/Email the Shwachman Diamond Syndrome Foundation

The Shwachman Diamond Syndrome Foundation encourages families to connect with us and learn more about how we can assist you. Whether you are newly diagnosed or have been dealing with SDS for a long time, please contact us at 1-888-825-SDSF (7373) or email us.

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Vimeo VideosSDSF Vimeo Site/

International SDS Support Groups

Australia

Shwachman-Diamond Syndrome Support
Contact: Joan Buchanan
Phone: +61 2 9295 8359
Email: buchanan.joan@gmail.com

Canada

Mailing Address:
2152 Gatley Road
Mississauga, ON
Canada. L5H 3L9

Toll Free: 1-(866)-462-8907
Email: info@shwachman.org
Website: www.shwachman.org

Germany

Contact: Christiane Weyer
E-mail: jane.weyer@web.de
Website: www.shwachman.de
Phone: 05132/589581

Italy

The Association for Shwachman Syndrome
Contact: Aurelio Lococo
Email: aiss@shwachman.it
Website: www.shwachman.it

Nederland

Shwachman Syndrome Support Group
Email: info@shwachman.n1
Website: www.shwachman.nl

UK

Shwachman Diamond UK
Contact: Kathryn Doddridge
Email: family_matters@shwachman-diamond-uk.org