| Foundation Grants - Funding For Research Available |
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| Download Grant Application |
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| Overview |
| Shwachman-Diamond Syndrome (SDS) is a multi-system autosomal-recessive
disorder characterized by exocrine pancreatic dysfunction, and varying
degrees of marrow dysfunction with cytopenias. Many associated clinical
problems have also been described, including skeletal anomalies, metaphyseal
dysostosis, rib abnormalities, cleft palate, dental abnormalities
and others. Shwachman-Diamond Syndrome Foundation (SDSF) is a nonprofit
support organization actively helping the victims of this disease.
SDSF is accepting grant requests for research relevant to this disease.
Any high quality, innovative research proposal deemed relevant to
SDS will be considered. The following are areas of particular interest: |
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Investigate or evaluate potential therapies or therapeutic strategies |
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Evaluate predictors of bone marrow abnormalities
to determine their correlation with the disease |
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Determine the causes of bone marrow failure and leukemia |
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Further delineate the pathogenesis of pancreatic disease |
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Determine if differences in disease complications occur dependent
on persistent vs. cylic neutropenia |
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Investigations related to adult patient presentation, management,
and care including transition from pediatric-centered to adult
care |
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Eligibility
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| Persons applying for these grants must be in a faculty position
with authority to hold an independent research grant (not a training
position). |
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| Letter of Intent |
| The potential applicant should write a one-page letter of intent
to the SDSF, indicating the applicant’s position and affiliation,
describing their planned project, and explaining its relevance to
Shwachman-Diamond Syndrome. These letters are reviewed by SDSF’s Medical
and Scientific Advisory Board (MSAB) grant review process. |
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| Purpose |
| This letter will be used to identify applicants who
will be asked to provide a full application. |
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| Dates |
| The letter is due no later than March 12th. All those who have submitted a letter of intent will receive a reply by April 5th. All Grant Applications must be submitted by May 15th. The final grant decision will be announced by July 31st with a
November 1st start date. |
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| Terms of Support |
| Support may be provided for up to two (2) years in an
amount not to exceed $65,000 per year. The second year funding will
not be released until a Progress Report has been reviewed and approved
by the MSAB. The date for the Progress Report is October 1st. Applicants
may submit only one grant application at a time, and may hold only one grant at
a time. |
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If you would like us to send you a grant application,
have any questions regarding the grant process or have an interest
in the disease, please contact SDSF at the address indicated on our
home page, call toll free 1-888-825-SDSF (7373) or via email at info@shwachman-diamond.org.
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