www.marrowfailure.cancer.gov
www.rarediseases.org
www.pubmed.gov
www.geneticalliance.org
http://0-ghr.nlm.nih.gov.catalog.llu.edu/condition=shwachmandiamondsyndrome
Disability Resources on the Internet:
www.disabilityresources.org
Family Village: A Global Community of Disability-Related Resources:
www.familyvillage.wisc.edu
www.familyvoices.org
Care Pages to connect friends and family
http://cms.carepages.com/CarePages/en/AboutCarePages/
http://www.caringbridge.org/?gclid=CPG-kuCMrpICFRwqagod3xN7uw
Internet Resources for Special Children:
www.irsc.org
Related Cord Blood Program 501 428 3388
www.natinoalcordbloodprogram.org
www.familycordbloodservices.com
http://www.chori.org/Services/Sibling_Donor_Cord_Blood_Program/indexcord.html
SSI Supplemental Security Income Contact SS office
near you
http://www.ssa.gov/notices/supplemental-security-income/
CHIP children's health insurance program 877 543
7669
http://www.cms.hhs.gov/home/schip.asp
Patient Advocate Foundations 800 532 5274
www.patientadvocate.org
Nutrition for kids
www.nutritionforkids.com
www.groups.yahoo.com/group/feeding_g-tubes
www.bmtnews.org
www.medicalert.org
mercymedical@erols.com 800 296 1217
www.wish.org
Help to interpret your bone marrow biopsy
report (cytogenics)
http://www.kumc.edu/gec/prof/cytogene.html
