Here below are SDS/Bone Marrow Failure Centers that SDSF recommends. These are hospitals that have doctors who are knowledgable

about SDS and some of them are even on our Medical Advisory Board. Each center will arrange appointments as needed for hematology, GI, endocrinology, orthapedics and more.  These SDS experts will then often draw up a patient care plan for the patient to take home to their own physicians who routinely follow them. This can make it easy for managing record keeping and easy for getting your records to the SDS Registry. For other doctors please click on a link below to find ones in your area. If you can't find one near you,  you might find it valuable to inquire at the closest teaching medical facility to see if they have physicians on staff who know about SDS. In some cases, even though they may not know about SDS specifically, they may have experience with one or more of the 7 other bone marrow failure diseases. 

EAST COAST: 

Bone Marrow Failure Program And Fanconi Anemia Comprehensive Care Clinic
Pediatric Hematology/Oncology Pediatrics
Pediatric Hematology/Oncology And Stem Cell Transplant
269-01 76th Ave
New Hyde Park, NY 11040 
(718) 470-3470

Dr. Colin Sieff, MB, BCh

Co Chair Bone Marrow Failure Multidisciplinary Clinic

Children's Hospital Boston

300 Longwood Ave

Boston, MA  02115
Appointment Phone: 617-919-2697
Fax: 617-730-0934

Email: fa-bmf@childrens.harvard.edu
Website: http://childrenshospital.org/clinicalservices/Site1970/mainpageS1970P0.html

MID ATLANTIC

Monica Bessler, M.D., Ph.D.

Buck Family Professor in Hematology
Director, Pediatric & Adult Comprehensive Bone Marrow Failure Center
The Children¹s Hospital of Philadelphia and
The Hospital of the University of Pennsylvania
University of Pennsylvania School of Medicine
3615 Civic Center Blvd, Abramson Research Center rm 302
Philadelphia PA 19104

Email: besslerm@email.chop.edu
Phone: 267-426-8782
Fax: 267-426- 9892.

Appointments for pediatric patients:
Nancy Fritz, R.N.
Division of Hematology
4th Floor Seashore House Building
The Children's Hospital of Philadelphia
34th Street and Civic Center Blvd.
Philadelphia, Pa. 19104
Phone: 267 426 8159.
Fax: 215 590 3992

Appointments for adult patients:
Beth Hoffman
Clinical and Investigative Hematology Center
Division of Hematology
HUP, 3 Dulles
3400 Spruce Street
Philadelphia, PA 19104
Phone: 215-615-6555
Fax: 215-615-6599

MID WEST

Richard E. Harris, M.D.

Blood and Marrow Transplant Program
Bone Marrow Failure Comprehensive Care Center
Cincinnati Children's Hospital Medical Center, CHRF-2055
3333 Burnet Avenue, ML 7015
Cincinnati, OH 45229-3039

For appointments please call

WEST COAST

Dr. Akiko Shimamura, M.D., Ph.D.

Associate Professor of Pediatrics
Division of Hematology/Oncology
University of Washington
815 Mercer St., Rm 356
Seattle, WA 98109
Tel: 206-685-5282
Fax: 206-616-4082

For Other doctors in your area:

• Eastern US
  
  
• Mid Atlantic
  
• Midwest
  
  
• Western US

CANADA