Would you enjoy e-mailing other Shwachman-Diamond families? Have you ever thought your child seems to have something you may not think is related to the syndrome? Or just want to know how another family deals with certain aspects of the syndrome that your patient may have? SDSF is connected to, but does not provide any medical information for, a list serv support group through Yahoo. It is a good way to stay in contact with other SDS families.

Click on the button at right to join THE SHARING LINK

If you have any questions, please contact Joan Mowery at jmlmowery@yahoo.com

If you would like to contact someone in your area about SDS, please feel free to email or call any of these people below. They would be happy to receive your communication and discuss any questions you may have about this disease.
Regional Family Contacts