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Talk to SDS Families PDF Print E-mail

Would you enjoy e-mailing other Shwachman-Diamond families? Have you ever thought your child seems to have something you may not think is related to the syndrome? Or just want to know how another family deals with certain aspects of the syndrome that your patient may have? SDSF is connected to, but does not provide any medical information for, a list serv support group through Yahoo. It is a good way to stay in contact with other SDS families.

If you would like to contact someone in your area about SDS, please feel free to email or call any of these people below. They would be happy to receive your communication and discuss any questions you may have about this disease.

Regional Family Contacts

Virginia
Donna Garfield
703-425-9750
Illinois

Kentucky
Corky DeBoer

Pam Miller
708-532-4954

513-504-8402


PRMiller@twc.com
Missouri Joan Mowery jmlmowery@yahoo.com
Pennsylvannia
Kim Zajac
570-350-1354
Texas Elvira sample 214-546-2517
Florida
Jenette Brooks
863-682-4646

greytabby@tampabay.rr.com

California

Washington
Theresa Henle

Sarah Bowman
949-228-1291

206-276-0208