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Coping with Diagnosis
Family Stories
New Family Packet
Newsletter Signup
SDS Registry
Doctor Database
Talk to SDS families
Adults with SDS
Back to School Advice
Transition care- Pediatric to Adult
Hospital Care Basket
Resource Web Links
Special Offers
Resource Links PDF Print E-mail
Explore Resource Web Links
WikiGenetics
National Cancer Institute: Inherited Bone Marrow Failure Syndromes
National Organization for Rare Disorders
National Center for Biotechnology Information: Pub Med Search
Genetic Alliance: Understanding Genetics
University Library Login Page
Disability Resources on the Internet
Family Village: A Global Community of Disability-Related Resources
Family Voices: Speaking on Behalf of Children & Youth with Special Health Care Needs
CarePages: Connect with Friends and Family
CaringBridge: Free Websites that Support and Connect Loved Ones
Family Cord Blood Services
Children's Hospital Oakland Research Institute: Sibling Donor Cord Blood Program
Social Security Online: Supplemental Security Income (SSI)
Centers for Medicare and Medicaid Services: State Children's Health Insurance Program
Patient Advocate Foundation
Nutrition for Kids
Yahoo Health Groups
Blood and Marrow Transplant Information Network
MedicAlert Products & Services
Make-A-Wish Foundation
Cytogenetic Resources (Help to interpret your bone marrow biopsy report)
 Lotsa Helping Hands - task and meal manager for sick friends and family members
 
Diagnostic testing for SBDS Gene
SickKids: Division of Molecular Genetics
GeneDX: DNA Diagnostic Experts
Johns Hopkins Medical Institutions: DNA Diagnostic Laboratory
AmbryGenetics
 
Getting Your Medicine

Partnership for Prescription Assistance

Prescription Hope
WeHelpMeds.com
NeedyMeds.com
 
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