Helpful Links

The following links are provided to be useful to you.

General/Genetics

Rare Disorder Organizations

Neutropenia & Bone Marrow Biopsies

Bone Marrow Transplant & Cord Blood

Diagnostic Testing for SBDS Gene

Understanding Lab Results

Enzyme Therapy

Nutrition

Financial Support

Professional Research Article Databases

Prescription Help

School/Learning/IEP’s

Transition Care from Pediatric to Adult

Agencies that Help with Medical Travel

Health Care Support/Tools

Creating a Care Page