Helpful Links

The following links are provided to be useful to you.


Rare Disorder Organizations

Neutropenia & Bone Marrow Biopsies

Bone Marrow Transplant & Cord Blood

Diagnostic Testing for SBDS Gene

Understanding Lab Results

Enzyme Therapy


Financial Support

Professional Research Article Databases

Prescription Help


Transition Care from Pediatric to Adult

Agencies that Help with Medical Travel

Health Care Support/Tools

Creating a Care Page