SDS Foundation Grants – Funding For Research Available
Shwachman-Diamond Syndrome (SDS) is a multi-system autosomal-recessive disorder characterized by exocrine pancreatic dysfunction, and varying degrees of marrow dysfunction with cytopenias. Many associated clinical problems have also been described, including skeletal anomalies, metaphyseal dysostosis, rib abnormalities, cleft palate, dental abnormalities and others. Shwachman-Diamond Syndrome Foundation (SDSF) is a nonprofit support organization actively helping the victims of this disease. SDSF is accepting grant requests for research relevant to this disease. Any high quality, innovative research proposal deemed relevant to SDS will be considered. The following are areas of particular interest:
- Investigate or evaluate potential novel therapies or potential novel therapeutic strategies- preferred applications
- Evaluate predictors of bone marrow abnormalities to determine their correlation with the disease
- Determine the causes of and investigate treatments for bone marrow failure and leukemia
- Evaluate protocols and regimens for bone marrow transplants
- Evaluate causes and investigate treatments for graft vs host disease and other infections of post bone marrow transplants
- Investigations related to adult patient presentation, management, and care including transition from pediatric-centered to adult care
Persons applying for these grants must be in a faculty position with authority to hold an independent research grant (not a training position).
All Grant Applications must be submitted by May 15th. Applicants will receive an acknowledgement of grant submission within 2 weeks. After selection of grant recipient by SDSF Board of Directors, applicants will be notified within 2 months with decision.
Terms of Support
Support may be provided for up to two (2) years in an amount not to exceed $35,000 per year, including expenses. The second year funding will not be released until a Progress Report has been reviewed and approved by the MSAB. The date for the Progress Report is October 1st. Applicants may submit only one grant application at a time, and may hold only one grant at a time.
If you would like us to send you a grant application, have any questions regarding the grant process or have an interest in the disease, please contact SDSF at the address indicated on our home page, call toll free 1-888-825-SDSF (7373) or email us.