Doctor Database - Regional Clinics

*For those who don’t live near the clinics, there are other names (family referrals) to contact. These are names from our families’ recommendations. Please feel free to contact these doctors for consultation or referrals.

Eastern United States

Bone Marrow Failure Program And Fanconi Anemia Comprehensive Care Clinic
Lipton, Jeffrey M, M.D., Ph.D.
Pediatric Hematology/Oncology Pediatrics
Pediatric Hematology/Oncology And Stem Cell Transplant
269-01 76th Ave
New Hyde Park, NY  11040
(718) 470-3470
*Clinic

Amarnath, Rathna MD
Palmetto Pediatric Gastro
(803) 254-1006
2113 Adams Grove
Columbia, SC  29203
*Family Referral

Eva Perdahl-Wallace, MD
Hematology / Oncology
Children’s National Medical Center
Cancer and Blood Disorders of Northern Virginia
Boulevard Medical Building
8301 Arlington Boulevard, Suite 209
Fairfax, VA 22031
703-876-9111
Fax: 706-698-8338

Midwest

Cincinnati Children's Hospital Medical Center
Bone Marrow Failure Clinic
Dr. Richard Harris
MLC 11013
3333 Burnet Avenue
Cincinnati, OH  45229-3039
www.cincinnatichildrens.org/svc/alpha/b/blood/programs/bmf-clinic
For more information, or for a consultation, please contact the Bone Marrow Failure Coordinator, Sue Heist, RN, at (513) 636-3570, or toll-free at 1-800-344-2462, extension 3570.
*Clinic

Dr. Sawaf
19229 Mack 
Suite 28
Grosse Pointe Woods, MI  48236
(313) 647-3200
Pediatric Hematology/Oncology
*Family Referral

The Children's Hospital of Wisconsin
Steven Werlin MD
9000 Wisconsin Ave
Milwaukee, WI  53226
Contact:  Lilllian Sablan RN
(414) 266-3379
*Family Referral

Dr. Ashok Raj
Pediatric Hematologist
Louisville, KY
(502) 629-7750
*Family Referral

Dr. Thomas Stephen
Pediatric GI
Louisville, KY
(502) 629-5796
*Family Referral

Internal medicine-
Simeon Prager. MD
6555 Chippewa Av
St. Louis, MO  63119
(314) 647-2555
*Family Referral 

Hematology-
Morey Blinder, MD
Washington U. School of Medicine
4921 Parkview Place
St. Louis, MO 63110
(314) 362-8808
 *Family Referral 

Bone Health-
Kathryn Deimer, MD
Assistant Dean
Washington U. School of Medicine
1020 N. Mason Suite 205
St. Louis, MO  63141
(314) 454-7775
*Family Referral 

Diabetes-
Garry S. Tobin, MD
Washington U. School of Medicine
4921 Parkview Place
Suite B-13th Floor
St. Louis, MO  63110
(314) 362-3500
 *Family Referral 

Liver- Hepatology
Mauricio Lisker-Melman, MD
Washington U. School of Medicine
4921 Parkview Place
Suite C-8th Floor
St. Louis, MO  63110
(314) 454-5108
*Family Referral

The Children's Hospital of Iowa
Frederick D. Goldman, M.D.
Associate Professor
Department of Pediatric Hematology/Oncology Director,
Pediatric Immune Disorders
TEL: (319) 356-7360
FAX: (319) 356-7659
e-mail: frederick-goldman@uiowa.edu
*Family Referral

Western United States

Oregon Health & Science University
Division of Pediatric Hematology/Oncology
Mail code CDRCP
3181 S.W. Sam Jackson Park Road
Portland, OR  97239-3098
Appointments: (503) 418-5150
Coordinator: Kelly Brady, R.N. (503) 418-5341
Peter Kurre, M.D.
Assistant Professor,
Pediatrics, and Cell and Developmental Biology
www.ohsuhealth.com/dch
*Clinic

The Children's Hospital- Denver
Dr. Roger H. Giller
Specialty:  Hematology/Oncology - Pediatrics
13123 East 16th Avenue
Ph: 720-777-6892
Fax: 720-777-7279
Aurora, CO 80045
*Family Referral

The Children's Hospital-Denver
Gaia Georgopoulos M.D.
Specialty: Orthopedic Surgery
13123 East 16th Avenue
Aurora, CO 80045
Ph: 720-777-5571
Fax: 720-777-7268
*Family Referral

The Children's Hospital-Denver
Michael S Kappy M.D.
Endocrinology
13123 East 16th Avenue
Aurora, CO 80045
Ph: 720-777-8548
Fax: 720-777-7301
*Family Referral

The Children's Hospital- Denver
Ronald J Sokol M.D.
Specialty: Gastroenterology - Pediatrics
13123 East 16th Avenue
Aurora, CO 80045
Ph: 720-777-6669
Fax: 720-777-7277
*Family Referral

Mid Atlantic

National Institutes of Health
Principal Investigator: Blanche P. Alter, M.D., MPH
(800) 518-8474
www.marrowfailure.cancer.gov
*Clinic
Ask this clinic for a doctor referral in the area. Although this clinic is for research only, it can be an important tool for those who live in the area.

Near Toronto

Dr. Peter Durie
Division of Gastroenterology and Nutrition
The Hospital for Sick Children
555 University Ave
Toronto, Ontario, Canada  M5G 1X8
Phone: (416) 813-6185
Fax: (416) 813-6531
*Clinic