The following downloads may be helpful to you.
- Shwachman Diamond Syndrome Foundation Brochure
- Our promotional brochure that explains SDS and the SDSF
- SDS Glossary
- A medical glossary of all terms associated with Shwachman Diamond Syndrome
- Draft Consensus Guidelines for Diagnosis and Treatment of Shwachman-Diamond Syndrome
- The medical guidelines for diagnosis and treatment of SDS. We recommending sending a copy of this document to all of the doctors involved with treating SDS patients.
- Organizing SDS Patient Care
- Instructions, templates, and forms to organize a binder for SDS patients’ medical information