SDS Families in the News


An SDS family organizes a bone marrow drive in hopes of finding a match

A family is organizing a bone-marrow registration drive in hopes of finding a match for their 6-year-old son, Wade, who needs a bone-marrow transplant. Visit Link to Story

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Stony Brook Welcomes Rylie to the womens soccer program

The Stony Brook women's soccer team welcomed its newest member on Friday afternoon with the signing of five year-old Rylie Laber from Seldon, New York. Visit Link to Full Story  

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Mother gives gift of life to ailing son

For Honey Denson, the best Mother's Day gift isn't going to be one she's getting, but one she's giving. Her 10-year-old son, Luke Denson, needs a bone marrow transplant, and she's a match.... Visit Link to Full Story          

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UK woman honors her sister’s battle with SDS with a special tattoo

The tattoo means we will always be together' Grieving mum-of-two has sister's ashes inked into portrait on her back Visit Link to Story

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The gift of home during the holidays

Natalie Livengood will be home this Christmas thanks to Akron Children's Hospital. Visit Link to Story

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Tough Mudder Run a Success

Dan Kilby and his team, "We Mudd For Sarah," finished their 5th Annual Tough Mudder Run. They did such a great job raising money and awareness of SDS for SDSF. The team raised more than $12,500 for SDSF! We appreciate all of your dedication and support. Dear Family and Friends, We did it!!!! Team Sarah conquered another Tough Mudder run this past Saturday. It was an epic day on a beautiful mountain. I want to first thank Team Sarah, an amazing group of friends. Cures. Opportunity. Love. Relief. Peace. Safety. Dreams. Life. These things are possible when friends and ...

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8-year-old’s wish to join the Army is granted

8-year-old’s wish to join the Army is granted Visit Link to Story

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Communities come together for sick child, Natalie, with SDS.

Communities come together for sick child, Natalie, with SDS. Visit Link to Story

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Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration.

Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration. Visit Link to Story

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The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons.

The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons. Visit Link to Story

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