SDS Families in the News


Heartwarming We Are Batman Stop-Motion Video Might Just Bring a Tear to Your Eye

The Make-A-Wish organization, Reckless Abandonment Pictures and 12-year-old Booker team up for a tear-jerking Batman stop-motion short. https://www.youtube.com/embed/lpSP73haq3k Click here to read the full article.

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Pallamallawa boy Max Hyles is one of the faces of the 2020 Jeans for Genes Day campaign

[July 21, 2020 - Austrailia] Max, who is 3 years old, is one of the faces of the 2020 Jeans for Genes Day campaign. Three months of testing eventually revealed that Max had a rare condition impacting his pancreas - Shwachman-Diamond syndrome. Click here to read the full article.

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An SDS family organizes a bone marrow drive in hopes of finding a match

A family is organizing a bone-marrow registration drive in hopes of finding a match for their 6-year-old son, Wade, who needs a bone-marrow transplant. Visit Link to Story

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Stony Brook Welcomes Rylie to the womens soccer program

The Stony Brook women's soccer team welcomed its newest member on Friday afternoon with the signing of five year-old Rylie Laber from Seldon, New York. Visit Link to Full Story  

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Mother gives gift of life to ailing son

For Honey Denson, the best Mother's Day gift isn't going to be one she's getting, but one she's giving. Her 10-year-old son, Luke Denson, needs a bone marrow transplant, and she's a match.... Visit Link to Full Story          

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UK woman honors her sister’s battle with SDS with a special tattoo

The tattoo means we will always be together' Grieving mum-of-two has sister's ashes inked into portrait on her back Visit Link to Story

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The gift of home during the holidays

Natalie Livengood will be home this Christmas thanks to Akron Children's Hospital. Visit Link to Story

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Tough Mudder Run a Success

Dan Kilby and his team, "We Mudd For Sarah," finished their 5th Annual Tough Mudder Run. They did such a great job raising money and awareness of SDS for SDSF. The team raised more than $12,500 for SDSF! We appreciate all of your dedication and support. Dear Family and Friends, We did it!!!! Team Sarah conquered another Tough Mudder run this past Saturday. It was an epic day on a beautiful mountain. I want to first thank Team Sarah, an amazing group of friends. Cures. Opportunity. Love. Relief. Peace. Safety. Dreams. Life. These things are possible when friends and ...

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8-year-old’s wish to join the Army is granted

8-year-old’s wish to join the Army is granted Visit Link to Story

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Communities come together for sick child, Natalie, with SDS.

Communities come together for sick child, Natalie, with SDS. Visit Link to Story

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