Fundraisers


#GivingTuesday – November 27

#GivingTuesday, observed on the Tuesday following Thanksgiving (11.27.2018), celebrates giving back. Why not give back to the Shwachman Diamond Syndrome Foundation to help fund research for a cure? In support of #GivingTuesday on November 27, 2018, Facebook is partnering with PayPal to match up to $7 million in donations made on Facebook to eligible US-based 501(c)(3) nonprofits. The match applies to fundraisers for nonprofit organizations, including birthday fundraisers and Donate buttons. Fundraisers for personal causes aren’t eligible to receive the ...

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February Fundraising – Dare to Cure Rare

February 28 is Rare Disease Day. Help us raise awareness and funds for Rare Disease Day and Shwachman Diamond Syndrome this month! Join us in our challenge -- Dare to Cure Rare! We challenge you to create a fundraising campaign this month--whether it is selling t-shirts, hosting an event, creating a fundraiser on facebook, organizing a "dress down day" at your work or child's school, selling SDSF magnets or creating your own fundraiser! Join us to raise awareness and fund a cure!

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#GivingTuesday – November 28

Giving Tuesday, observed on the Tuesday following Thanksgiving (11.28.2017), takes the focus off of the commercialism of Black Friday and Cyber Monday and instead celebrates giving back. Why not give back to the Shwachman Diamond Syndrome Foundation to help fund research for a cure? On #GivingTuesday Facebook and the Bill & Melinda Gates Foundation are matching up to $2 million of funds raised on Facebook for U.S. nonprofits and Facebook is also waiving all fees for donations made to nonprofits on Facebook. Make your facebook donation on 11.28.2017.  

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Fundraising on Facebook

It is SUPER EASY to fundraise on facebook! You can add a "donate" button to a post to show your friends that you're raising money for the Shwachman Diamond Syndrome Foundation. Or, you can create a "fundraiser" on facebook to celebrate a birthday, anniversary, or other events. This is such an easy way to share your family's story, get people talking about SDS to raise awareness and to ultimately fund a cure!!! To add a donate button to your post: Click What's on your mind? on your News Feed. Type a message to encourage your facebook friends to ...

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Fundraising Idea – Casual for a Cure

This is a simple fundraising idea for your place of employment, local businesses or even your child's school. Most people have heard of or participated in something like this before. Participants would get to dress down in exchange for a donation. 100% of donations go to the Shwachman Diamond Syndrome Foundation to support research and help find a CURE! Click to Download and Customize a "Casual for a Cure Flyer".

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Shop Amazon Smile for Valentine’s Day

Are you going to buy your sweetheart a Valentine's Day present? Why not buy it on smile.amazon.com and make SDSF your charity?  That is really showing your love.

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2017 Rare Disease Day (Feb. 28) Fundraising Challenge

In honor of Rare Disease Day on February 28, 2017, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome. Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to help us reach our goal of $3,000 before February 28, 2017. Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.

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SDSF – Approved CFC Charity

SDSF is now listed on the CFC (Combined Federal Campaign) Charity List for the 2016 campaign.  Federal employees and members of the military will be receiving a list of all the eligible charities very soon and be encouraged to donate to the charities of their choice.  SDSF is listed in the 2016 national/international independent agencies under the number 10799.  Please share this information with any of your friends or relatives who are federal employees and ask them to consider making a donation to SDSF through the CFC.

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6th Annual Tough Mudder a Huge Success!

On Saturday, May 21st I completed the 6th annual Tough Mudder run for Sarah Kilby (my daughter).  This year I chose to run the Philly event, which is held 10 minutes from where I grew up, and attracted 7,000 participants over the weekend.  Two good friends, Tommy Taylor and William Lawless were great teammates on Team Sarah.  The course was a 10.5 mile trek filled with over 20 physically and mentally challenging obstacles.  It was an amazing 4 hours.  The start is always very emotional for me as I pluck my SDSF red bracelet and think of ...

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Shop Amazon Smile for Father’s Day

Father's Day is Sunday, June 19. Remember to shop smile.amazon.com and Amazon will donate to Shwachman Diamond Syndrome Foundation Inc. Click the image below to browse Father's Day gift ideas!

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