2 results for month: 06/2016


8th International Congress–Pictures and Presentation Abstracts

8th International Congress on Shwachman-Diamond Syndrome, Verona, Italy:                                   Selected Hematology Abstracts of Interest to Patients and Families - Johnson M. Liu, MD Johnson M. Liu Patients with SDS demonstrate varying degrees of bone marrow failure, including isolated neutropenia, mild to moderate thrombocytopenia, anemia, and/or pancytopenia.  Neutropenia is the most common hematologic finding, whereas anemia and thrombocytopenia are reported less frequently. The ...

6th Annual Tough Mudder a Huge Success!

On Saturday, May 21st I completed the 6th annual Tough Mudder run for Sarah Kilby (my daughter).  This year I chose to run the Philly event, which is held 10 minutes from where I grew up, and attracted 7,000 participants over the weekend.  Two good friends, Tommy Taylor and William Lawless were great teammates on Team Sarah.  The course was a 10.5 mile trek filled with over 20 physically and mentally challenging obstacles.  It was an amazing 4 hours.  The start is always very emotional for me as I pluck my SDSF red bracelet and think of Sarah.  Knowing what she has endured, and most likely will have to go through in ...