LATEST NEWS

Check out our current fundraisers (click here). We encourage you to contribute or ask your friends and family to contribute! It is critical that we support SDSF which supports the SDS community through funding more research, providing newsletters and family conferences, physician and patient education and so much more.

Help us help our SDS community by donating now!

SDS SCIENTIFIC CONGRESS  November 4-6 2013 Toronto, Canada

Call for Abstracts now! No later than June 7. Any scientists, doctors, patients, families welcome to attend. Let's work together to find better treatments and possibly a cure!! SDSF has contributed $15,000 towards this important event that reports on the latest research happening in the SDS field.



See the new research papers published from around the world!






SDS Newsletter

Click here to download our latest newsletter.

Summer newsletter partial pic

 

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Real Family Stories
Research In Action

There is no such thing as false hope. There is hope or no hope. By supporting the SDS scientific community to work towards a cure, we are giving ourselves HOPE and...... possibly a....

CURE FOR A FUTURE

Shwachman-Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and to improve medical management of symptoms, as well as to link families for emotional support and supply them with the most current medical information available. This information is provided with the expertise and cooperation of our professional medical advisory board comprised of doctors and scientists from around the world.

Let’s help create a positive, healthy future for all in our SDS community!!
Please consider fundraising or donating to help! There is a DONATE button at the top of this page

Ask your friends and families to help this community. People love helping their friends, families and co-workers. You will be amazed! Whether you create a letter writing campaign or a planned event, you can help SDSF and its community of patients and families live better lives. Hopefully the funds that are raised can one day help find a cure.